When Arthur was 3 weeks old, we received a phone call from the clinic where he was born to tell us about an abnormality in the Guthrie test. We...
“The first month was perfectly fine, with no symptoms that could lead us to say there was a problem… The second month we had some questions, but it was...
They told me “Emma has spinal muscular atrophy”. Emma was just one month old. I thought “why, what have I done?” The world was falling apart. The sentence I...